Is cbd oil safe for breast cancer survivors
Cannabidiol, also known as CBD, is one of many chemicals found in the cannabis plant. It has been touted in some online forums as an alternative treatment, and even a cure, for many illnesses, including cancer. And, some people with cancer say that CBD has helped them as a complementary therapy in managing their symptoms and side effects from standard cancer treatment.
Yet there’s very little research around CBD and its use in treating people with cancer. Here’s what to know about what CBD is and what science currently shows about whether it’s safe and effective for people with cancer to use.
What is CBD?
CBD is 1 of the hundreds of chemicals found in the flowering cannabis plant. CBD does not have the psychoactive, or mind-altering, effects of another chemical found in cannabis called tetrahydrocannabinol (THC). THC is the chemical that causes people to experience a “high.” CBD, on the other hand, is being used by some to help ease pain, anxiety, and sleep issues.
CBD comes from cannabis plants called hemp that are specifically grown with high levels of CBD and low levels of THC. Cannabis plants grown with high levels of THC are usually called marijuana. CBD comes from oil that is extracted from the cannabis plant. That oil can then be ingested as a liquid, a capsule, a gummy, or inhaled through vaping. It can also be added as an ingredient in such products as lotions and skin patches.
There is much about CBD that is still unknown. It has largely gone unstudied because, until 2018, it was considered a schedule I drug by the U.S. Drug Enforcement Administration (DEA). A schedule I drug is a drug that has been declared illegal by the DEA because of safety concerns over its potential for abuse and because there is no accepted medical use for it. Then, in September 2018, the DEA updated CBD’s status to become a schedule V drug. Schedule V drugs have a lower potential for abuse and are deemed to have some medical use.
There is currently 1 CBD treatment approved by the U.S. Food and Drug Administration (FDA) called Epidiolex, which is used to treat a rare and severe form of epilepsy in children. There are not currently any FDA-approved CBD medications for treating cancer or side effects of cancer treatments.
Can CBD help people with cancer?
Studies to answer this question are underway. Some scientists are studying whether CBD could relieve some of the side effects of cancer and its treatment, such as pain, insomnia, anxiety, or nausea. Other scientists are studying whether CBD could potentially slow or stop the growth of cancer.
To date, no large-scale studies have shown CBD to have benefits for the treatment of people with cancer. Most studies that have been done evaluating CBD as a cancer treatment were in mice or in human cells in the lab. For instance, there are some studies that have shown that CBD inhibits the growth of cancer cells in mice with lung cancer or colon cancer. Another study showed that CBD, together with THC, killed glioblastoma cancer cells in the lab. However, no studies have been conducted in people with cancer.
There have been some studies that show that CBD, alone or together with THC, may relieve pain, insomnia, or anxiety, but these studies were not specific to people with cancer. While no studies to date have shown that CBD eases these side effects specifically in people with cancer or people receiving cancer treatment, some people with cancer have reported benefits in taking CBD, such as helping with nausea, vomiting, depression, and other side effects. According to ASCO guidelines, your doctor may consider prescribing cannabinoids for chronic pain management if you live in a state where it is legal. However, ASCO guidelines state that there is not enough evidence to support the use of cannabinoids for preventing nausea and vomiting in people with cancer receiving radiation therapy or chemotherapy.
There are 2 synthetic cannabis medications, nabilone (Cesamet) and dronabinol (Marinol or Syndros), that are FDA-approved to treat nausea and vomiting related to chemotherapy. These medications are made in a laboratory.
Is CBD safe for people with cancer?
You may find stories online of people discussing the benefits of CBD as a cancer treatment or as relief for side effects. Please remember that such personal stories, while they may be well-meaning, are shared without scientific study and do not constitute evidence. The safety and efficacy of CBD for people with cancer still has to be proven in large, randomized, controlled clinical trials.
It is also important to note that some studies have shown that CBD might interfere with how your body processes cancer drugs, called a drug interaction. This might make cancer treatments more toxic or make them less effective. More research is needed on these effects, too. For these reasons, always tell your oncologist if you’re thinking about using CBD before you take it.
You may also be wondering if CBD is legal in your area. Some states allow the sale and possession of cannabis, including CBD and THC, for medical and recreational use. Others have stricter regulations, so state-by-state laws should always be learned before transporting CBD across state lines. Things are more complicated at the federal level. In 2018, the U.S. government recognized that hemp can be grown and manufactured legally as part of the Farm Act. Hemp can be used to make things like rope and clothing, in addition to CBD oil. In other words, hemp is no longer a controlled substance, which means it is not regulated by the government. This means that consumers have to evaluate the safety and quality of CBD products on their own. Some CBD, for example, may have much higher levels of THC than what is labeled.
The bottom line is this: Always talk to your doctor first if you’re thinking about using CBD. Because the research does not yet support the use of CBD in helping people with cancer, it’s important to raise the topic with your doctor before taking it. There are several clinical trials underway studying the use of CBD in cancer care, and you and your oncologist can talk through the possible benefits and risks of you joining a research study to help find answers to some of the questions about CBD, including whether it may reduce side effects or improve quality of life.
Can cannabis oil stop my breast cancer returning?
Health claims surrounding cannabis products frequently hit the news. But is there any evidence that they could reduce the risk of breast cancer coming back?
Breast Cancer Care’s Helpline often gets calls from people who are worried about their breast cancer returning after treatment, and who want to know if they can do anything to help.
Medical cannabis and cannabis oils have been in the news a lot recently. While these stories haven’t been about cancer, it’s clear some people believe cannabis could have anti-cancer properties.
However, despite ongoing research in this area, there’s no reliable evidence that any type of cannabis is an effective treatment for cancer.
What are cannabinoids?
Cannabis contains ingredients called cannabinoids. Two of these are THC (tetrahydrocannabinol) and CBD (cannabidiol).
THC is the chemical responsible for most of the effects that cannabis has on the mind or behaviour. CBD doesn’t cause these effects.
Some people think that cannabinoids like CBD may have health benefits.
Can cannabinoids be used to treat cancer?
According to Cancer Research UK: ‘Many hundreds of scientific papers looking at cannabinoids and cancer have been published, but these studies simply haven’t found enough robust scientific evidence to prove that these can safely and effectively treat cancer.’
The problem is that almost all these studies have been carried out either on cancer cells in the laboratory or on animals. And what works in the laboratory or in animals doesn’t necessarily have the same effect in the human body.
The chemicals used in these studies are also very different to the cannabis oils and products available to buy.
While a quick Google search will uncover examples of people who claim to have treated their cancer using cannabis oil, it’s not possible to draw conclusions from individual stories like these.
In order to properly assess the effects of cannabinoids on cancer, large clinical trials are necessary.
Is cannabis oil illegal?
According to the NHS website: ‘Many cannabis-based products are available to buy online, but their quality and content is not known. They may be illegal and potentially dangerous.’
Some cannabis-based products, such as hemp oil, can be bought legally as supplements from health food stores. However, there’s no guarantee that these products have any health benefits.
As the NHS website states: ‘Health stores sell certain types of ‘pure CBD’. However, there’s no guarantee these products will be of good quality. And they tend to only contain very small amounts of CBD, so it’s not clear what effect they would have.’
A very small number of people may get medical cannabis on prescription, for example if they have a severe form of epilepsy, or vomiting or nausea caused by chemotherapy. However, this likely to be the case only if other treatments have been tried first.
Dealing with worries about recurrence
Most people worry about breast cancer coming back (recurrence). These worries are normal, and the fear and anxiety usually lessens with time.
Knowing how to continue to be breast and body aware after treatment and the symptoms you should report can help manage your feelings of uncertainty.
The treatment you received will have been given to reduce the risk of the breast cancer coming back at its original site or elsewhere in the body.
Everyone copes with worries about recurrence in their own way, and there are no easy answers. But keeping quiet about them is probably not the best approach.
Breast Cancer Care’s Forum lets you share your worries with other people in a similar situation to you.
You can also read our tips on coping with anxiety and find suggestions in BECCA, our free app that helps you move forward after breast cancer treatment.
3 Ways Cannabis Oil Helps Fight Breast Cancer
More than 60 peer-reviewed studies on medical marijuana were conducted between 1990 and 2014 for conditions ranging from breast cancer to Parkinson’s disease. The vast majority of these studies (68.3%) found marijuana had medicinal benefits, 23.3% were inconclusive, and only 8.3% yielded negative results. Medical marijuana is beneficial in its various forms, and marijuana and cannabis oil may have to the potential to fight breast cancer and other diseases.
In the U.S., 44 states have medical marijuana laws on the books, which means 85% of the country should have access to medicinal cannabis for treating a wide range of debilitating conditions. In reality, the laws governing this vary greatly by state and obtaining medical marijuana is difficult, if not impossible, in many of the 44 states due to the way the laws are written. Moreover, marijuana is still illicit on a federal level and legislation dating back to 1937 needs to be rewritten.
Forms of Medical Marijuana
Medical marijuana is available in many different forms:
- Joints smoked like illicit marijuana
- It is also available to vape
- Edibles such as tea, cookies, popcorn, crackers, nut mixes, lollipops, ice cream, gummy bears, chocolate bars, chews, and many other kinds of food.
- Sublingual sprays
- Transdermal patches
- Topical ointment
Each method has its own pros and cons so it is important to talk to your physician about what form will work best for your specific medical condition.
What is Cannabis Oil?
Cannabis oil is a thick, sticky, resinous substance extracted from the cannabis plant (Cannabis sativa or Cannabis indica). Cannabis oil is obtained by separating the resins from cannabis flowers using a solvent extraction process. Cannabis oil is the most concentrated and potent of the three main cannabis products, the other two being the actual cannabis flower (marijuana) and resin (hashish).
Like marijuana, cannabis oil contains two primary ingredients: the high-inducing THC (tetrahydrocannabinol) and cannabidiol (CBD), the second most active ingredient in marijuana. Typically, oils marketed for medicinal uses contain much less THC than an average joint, however, both THC and CBD are touted for their curative powers. Unlike medical marijuana,cannabis oil is legal in all 50 states, so long as it does not contain THC.
High quality cannabis oil can be used medicinally via several methods:
- As a suppository
- Applied topically
Cannabis Treatment: Breast Cancer
Cannabidiol and its related cousin chemicals, all broadly called cannabinoids, show some benefits for reducing chemotherapy-related pain and other symptoms like vomiting and nausea in patients. Other research has shown cannabinoids can uniquely target and kill cancer cells and anecdotal cases speak to supposedly miraculous recoveries from cancer as a result of using cannabis oil.
Unfortunately, some people with cancer have been scammed, taking cannabis oil sold illegally through drug dealers. Research does not show any evidence cannabis oil is a cure, and moreover, cannabis oil sold illicitly on the street is often contaminated with dangerous ingredients and may not even contain any THC or CBD. So the question remains, does cannabis oil have any benefits for breast cancer patients? Here is a look at three potential uses of high quality cannabis oil for breast cancer.
1. A research study showed CBD inhibits a gene called Id-1.
Researchers believe Id-1 triggers the metastatic process responsible for spreading cells from the original breast tumor to other parts of the body such as the brain and lungs. “This is the first evidence that a cannabinoid can target the expression of an important breast cancer metastasis gene,” said Manuel Guzman, a Spanish expert on cannabinoids and cancer. He described the California study as giving “preliminary insight into the question of whether CBD could be used clinically to treat metastatic breast cancer.” The experiments in this study were conducted in cultured cells, therefore animal model research is the next step to determine if cannabis oil has the potential for treating metastatic breast cancer.
Moreover, Id-1 is just one of many genes involved in breast cancer metastasis, so future research also needs to examine the impact of CBD on other metastasis genes.
2. CBD oil may help slow or stop the spread of cancer.
A California woman received a grim diagnosis of an aggressive form of breast cancer called HER2-positive, already in late stages and metastasized to her lungs. She was told she only had 18 months to two years to live. She used three different homemade herbal remedies containing high amounts of CBD. She made the concentrate out of marijuana plants using low enough temperatures to retain the medical benefits of the CBD, while minimizing the psychoactive effects of the THC. The end results were a salve applied topically to her breast, a tincture she drank as a tea in the morning, and a high-potency oil kept in a syringe for measurement purposes, administered through a suppository. The latter allowed the medicine to be absorbed more efficiently. Within five weeks of treatment, a scan showed her lymph nodes were clear and the tumors were basically gone. Her homemade CBD treatment resulted in halting the spread of an especially aggressive form of breast cancer. Although this story is anecdotal, it speaks to the potential of CBD for treating breast cancer.
3. Cannabis is useful in combatting multiple cancer-related symptoms including anorexia, chemotherapy-induced nausea and vomiting, pain, insomnia, and depression.
The safety of cannabis is acceptable with generally tolerable and short-lived side effects. Preclinical data suggest cannabinoids are effective in treating and preventing chemotherapy-induced peripheral neuropathy. Preclinical data indicate cannabinoids may directly impart anti-tumor activity, possibly most notably in central nervous system malignancies. While anecdotal evidence is promising regarding the curative effects of CBD for breast cancer, large-scale clinical studies are needed to test this hypothesis.
Suggested CBD Oils:
- Pure Organic Wintermint CBD Oil – 750 mg
- Pure Organic Wintermint CBD Oil – 3000 mg
Suggested Capsule forms of CBD Oil:
Do you know someone who has used Cannabis Oil? Was it helpful? Tell us in the comments below!
It’s irresponsible to post anecdotal stories as proof. Anecdotal stories have led to all kinds on crazy treatments of breast cancer over the years. You would be shocked to know what treatments were touted based on single experiences. Anecdotal stories should be removed.
CBD oil it’s good for dense breast tissue ? Please help I need your kindheart advice about my problem . Thank you and God bless us all.
Thank you for sharing and spreading awareness! Cannabis is really indeed magical. As studies progress, it unfolds a lot of possible uses and applications in science and medicine. I hope this could be the future treatment of a lot of diseases.
CBD stands for cannabidiol. It is the second most common of the active ingredients of cannabis (marijuana). While
cbd for pets is an integral part of medical marijuana, it originates directly from the hippopotamus, which is a cousin of the marijuana plant. While CBD is part of marijuana (one of the hundreds), it does not in itself cause a “high”. According to a report from the World Health Organization, “CBD has no effects suggesting abuse or dependence. So far, there are no signs of public health problems associated with the use of pure CBD.
wow! I didn’t know that cannabis can also help cure cancer disease. it’s so amazing how cannabis works in different types of diseases.
Of course, on the first place 68.63% of the studies prove that marijuana has medicinal benefit that many people can people get through it. Like marijuana, cannabis oil contains marijuana active ingredients.
Thank you for sharing your article on cannabis oil as a treatment for breast cancer. It’s interesting to know how preclinical data shows how cannabis is effective in treating and preventing cancer-related symptoms like chemotherapy-induced nausea and vomiting, pain, insomnia, and depression. Although more tests and clinical studies are needed, just like you said, it may be something worth a try and looking into. I can only imagine how much pain a person in chemotherapy goes through every time. We’d be looking out for more updates and studies on this subject. Thank you for sharing!
Excellent article! I cannot believe cannabis oil can impact on cancer survival. Would love to hear more about this!
After an ultrasound and mammogram, I was diagnosed in Feb/17 with stage 3A breast cancer with lymph node involvement under my right arm. I did have a double mastectomy and removal of cancerous lymph nodes under my right arm, but I refused chemo, radiation and hormone suppressants. I knew I needed my immune system to stop my cancer spread, even with the removal of the lymph nodes. I’m not sleeping well. I have nerve damage from removal of my lymph nodes under my arm and scar tissue on my chest from the mastectomy. A lesion has been found on my cervix and I’m due for an MRI mid-June this year. I’m about to start taking high CBD 20:1 MCT oil, 1/2 tsp morning and evening. I’m hopeful that it will help me sleep and help with the pains from my mastectomy, at least. Any other benefit of stopping spread or healing would be an absolute blessing. Great forum, thanks to all who shared. I feel alone on this most of the time.
Hi Patti. Just read your post from a last year. I’m in a similar position now – seeing oncologist in a few weeks, but feel quite confident in refusing chemo and hormone suppressants. I was just wondering how you are getting on? I really do hope you are doing well. Would be great to hear from you if you have a chance. Best wishes Trish
Question about tamoxifen and interactions with cannabis – wondering if a topical CBD would interfere with the use of tamoxifen for my mom and her breast cancer?
Hi Carey, We would recommend that she ask her doctor to be certain. Best of luck to her with her treatments and I hope that all is going well!
I was so surprised! “A research study showed CBD inhibits a gene called Id-1. Researchers believe Id-1 triggers the metastatic process responsible for spreading cells from the original breast tumor to other parts of the body such as the brain and lungs. ” Thanks for sharing!
I was diagnosed with Lymphoma T-Cell cancer in April 2018. I have gone thru 5 CHOP treatments of chemo. I got congestive heart failure from it and could not continue thru the 6th and final chemo. Turns out after a PET scan, ne lymph node in my neck was still there. All others in my body were gone. Now I have started a second, less strong chemo treatment. I was told that if I didn’t take this chemo, I could be dead before Christmas. I’m scared! Do this kind of Cannabis oil work for
lymph node T-Cell??
Carole, I am so sorry to hear about your test results. I can only imagine how scary this must be for you. Please don’t allow your doctor’s words to discourage you. Doctors can make guesses on how long you might live with your condition, but they cannot predict the future. I’ve seen so many that have been flat out wrong over the years. individuals who had 6 months to live but were still around 10 years later. Statistics cannot predict individual outcomes. It’s so important to hold on to hope and faith. Alternative therapies (such as CBD oil) can be used in conjunction with your regular medical treatments but should not be used in place of them. In other words, CBD oil should be viewed as a supplement to your ongoing treatments but should never be considered the treatment itself. Here’s a guide on using Cannabis Oil During Cancer Treatments that should answer most of your questions. As always, we recommend consulting with your doctor before using this product or others. Please know that you are in my thoughts and prayers.
In January 2018 I was diagnosed with stage 2a breast cancer. I was told the tumor was 1.5 to 2 cm in size. My brother had a homemade cannibus oil and I had ordered suppositories. Since I have never use marijuana in any form the suppositories were to be a better option. I started using it in mid January and eating a diet that included lots of carrots, broccoli, eating tomatoes and tomatoe soup and a list of other foods that were to stop the breast cancer cells. My surgery was on Jan. 31st because I wanted the tumor out of me. the pathology report came back and the tumor was .07cmx.08cmx.05cm. one-fourth the size. So what did it? Or were the other two just wrong? Not sure but I am trying a way to get me the CBD oil that I can use on a daily basis.
I would like to know the doses?
I’m so curious to hear what ratio and dosage you took. I was diagnosed with triple positive Stage 1a invasive ductal carcinoma of the left breast 2 weeks ago- no node involvement yet. They want me to do 6 rounds of chemo and Herceptin- type drugs (those for a full year), plus a partial mastectomy after that, plus radiation. I started taking pure CBD before bed but am really interested in using a THC/ CBD blend to help control/ shrink the tumor. I’d so appreciate any advice!
I was diagnosed with HER2 positive breast cancer that was in my lymph nodes. After I started my regimen of weed my scans are clear and I had no bad side affect from chemo. I think marijuana has cured my breast cancer and will stop it from spreading!! I am 33 years old and cancer free!! I am forever grateful to this plant for helping me and giving me more years with my 6 year old daughter!
Congratulations on being a survivor! I’m also HER2 positive luckily it didn’t spread. Can you provide more detail what your regimen consists of? I’m very interested but just don’t know how to go about this. Thank you!
Could you go into specifics on your Regimen for treatment. How long did it take you to build up to your dose?
Other sources I have found recommend taking an amount equal to a grain of rice 3 times a day and double that every 4 days until you get to 1 gram a day. Then continue for 60 days. If the cancer is gone by then you want to reduce the amount .25 gram and continue to take for a while until you feel like your free.
If you have a medical card in Colorado you can purchase the oil at a dispensary. They sell it for recreational but it’s not strong enough, you need the full FECO. It’s not that hard to make if you have quality flower.
I would like to know more about the CBD oil and THC,what is safe,the best way to take,how much to take and where to purchase safety to receive the right oil.Had breast cancer in 1992 and came back,just had both breast removed 6-1-17 and 4 high doses(two different kinds combined) chemo treatments.In severe pain daily from bone pain(neck,spine,hips,feet,just about every bone in my body.Surgeon I see said I can not have surgery because my back and neck is so bad that I could be paralyzed and he told me not to let anyone operate on it,this is what he specializes in but refuses to operate because of the danger.Just fell and broke my hip in two places(3 months after finishing chemo.I take 10mg of Norco(allowed only 4 within 24 hours,still hurt Day and night.please if there’s something better and safer would rather not take Norco because if I stay up on my feet after taking i still am in bad pain.Tired of not able to do anything just because of so much pain,other wise I could do more.
5hisnisna great topic to discuss and I read all the requests for help from people being diagnosed with various Cancers. In the UK Cannabis oil is still illeagle, but it isn’t in Canada, I would suggest that you visit a Canadian forum as the users there will have more advice on how to administer the oil the best way for you
Also, take a look on you tube under Sacred Plant, it’s American but really interesting.
My theory of why CBD oil cures some diseases is different from others’. Since the pathogen mentioned below can cause all those diseases, and since CBD kills that pathogen (CBD is the plants’ natural defense against that type of microorganism), then that’s how it works.
Some online documents state this cancer-causing, mental illness-inducing airborne pathogen is not zoonotic. That’s wrong! It’s carried and shed by bats in their feces. And healthy people can get it, too.
My coworkers and I, all immunocompetent, got Disseminated Histoplasmosis from roosting bats, that shed the fungus in their feces. The doctors said we couldn’t possibly have it, since we all had intact immune systems. The doctors were wrong.
More than 100 outbreaks have occurred in the U.S. since 1938, and those are just the ones that were figured out, since people go to different doctors. One outbreak was over 100,000 victims in Indianapolis. 80-90+% of people in some areas have been infected, and it can lay dormant for up to 40 years in the lungs and/or adrenals.
This underdiagnosed airborne infectious disease mimics the flu and can cause malignancies, precancerous conditions, rheumatological diseases, connective tissue diseases, heart disease, autoimmune symptoms, inflammation, adrenal insufficiency, seizures, migraines, hydrocephalus, hallucinations, etc. and is often undiagnosed/misdiagnosed in immunocompetent people.
It’s known to cause hematological malignancies, and doctors claim leukemia patients go into remission when given antifungal. My friend in another state who died from lupus lived across the street from a bat colony. An acquaintance with alopecia universalis and whose mother had degenerative brain disorder has bat houses on their property.
Researchers claim the subacute type is more common than believed. It’s known to at least “mimic” autoimmune diseases and cancer and known to give false-positives in PET scans. But no one diagnosed with an autoimmune disease or cancer is screened for it. In fact, at least one NIH paper states explicitly that all patients diagnosed with sarcoidosis be tested for it, but most, if not all, are not. Other doctors are claiming sarcoidosis IS disseminated histoplasmosis.
What if this infection, that made me and my coworkers so ill, isn’t rare in immunocompetent people? What if just the diagnosis is rare, since most doctors ignore it?
Older documents state people who spend a lot of time in a building with roosting bats, in caves, working as landscapers, construction workers, pest control workers, etc. are known to get Disseminated Histoplasmosis, but the info appears to have been lost, for the most part. And now bat conservationists encourage people to leave bats in buildings/homes. What a terrible mistake they’ve made.
This pathogen parasitizes the reticuloendothelial system/invades macrophages, can infect and affect the lymphatic system and all tissues/organs, causes inflammation, granulomas, and idiopathic (unknown cause) diseases and conditions, including hematological malignancies, autoimmune symptoms, myelitis, myositis, vasculitis, panniculitis, dysplasia, hyperplasia, etc. It causes hypervascularization, calcifications, sclerosis, fibrosis, necrosis, eosinophilia, leukopenia, anemia, neutrophilia, pancytopenia, thrombocytopenia, hypoglycemia, cysts, abscesses, polyps, stenosis, perforations, GI problems, hepatitis, focal neurologic deficits, etc.
Many diseases it might cause are comorbid with other diseases it might cause, for example depression/anxiety/MS linked to Crohn’s.
The fungus is an Oxygenale and therefore consumes collagen. It’s known to cause connective tissue diseases (Myxomatous degeneration?), rheumatological conditions, seizures, and mental illness. Fungal hyphae carry an electrical charge and align under a current. It causes RNA/DNA damage. It’s known to cause delusions, wild mood swings (pseudobulbar affect?), and hallucinations. It’s most potent in female lactating bats, because the fungus likes sugar (lactose) and nitrogen (amino acids, protein, neurotransmitters?), releasing lactase and proteinases to obtain them. What about female lactating humans…postpartum psychosis (and don’t some of these poor women also have trouble swallowing)? The bats give birth late spring/summer, and I noticed suicide rates spike in late spring/early summer. It’s known to cause retinal detachment, and retinal detachments are known to peak around June-July/in hot weather. A map of mental distress and some diseases appear to almost perfectly overlay a map of Histoplasmosis. Johns Hopkins linked autism to an immune response in the womb. Alzheimer’s was linked to hypoglycemia, which can be caused by chronic CNS histoplasmosis. Cancer is known to occur more often near rivers than in mountains or deserts, just like this infection.
The bats eat moths, which are attracted to blue and white city lights that simulate the moon the moths use to navigate. Bats feed up to 500 feet in the air and six miles away in any direction from their roost, but not when it’s raining or when the temperature is less than approximately 56° F. The fungus can grow in bird feces, but birds don’t carry it because their body temperature is too high, killing the fungus.
I believe the “side effects” of Haldol (leukopenia and MS symptoms) might not always be side effects but just more symptoms of Disseminated Histoplasmosis, since it causes leukopenia and MS symptoms. What about the unknown reason why beta receptor blockers cause tardive dyskinesia? The tinnitus, photophobia, psychosis “caused” by Cipro? Hypersexuality and leukemia “caused” by Abilify? Humira linked to lymphoma, leukemia and melanoma in children? Disseminated Histoplasmosis is known to cause enteropathy, so could some people thought to have nonsteroidal anti-inflammatory drug enteropathy have it and taking NSAIDs for the pain/inflammation it causes, and the NSAIDs aren’t the actual culprit?
From my experience, I learned that NO doctor, at least in DFW, will suspect subacute and/or progressive disseminated histoplasmosis in immunocompetent people. Some doctors, at least the ones I went to, will actually REFUSE to test for it, even when told someone and their coworkers have all the symptoms and spend a lot of time in a building with bats in the ceiling. Victims will be accused of hypochondriasis. (My doctors told me only farmer’s get it, it’s only in bird feces, and it only infects the lungs. wrong, wrong, and wrong!) In fact, the first doctor to diagnose me was a pulmonologist, and the only reason he examined me was to try to prove that I didn’t have it, when I really did. No doctor I went to realized bats carry the fungus. And NO doctor I went to in DFW, even infectious disease “experts,” understand the DISSEMINATED form, just the pulmonary form, and the only test that will be done by many doctors before they diagnose people as NOT having it is an X-ray, even though at least 40-70% of victims will have NO sign of it on a lung X-ray. It OFTEN gives false-negatives in lab tests (some people are correctly diagnosed only during an autopsy after obtaining negative test results) and cultures may not show growth until after 6-12 weeks of incubation (but some labs report results after 2 weeks).
One disease of unknown cause that could be caused by Disseminated Histoplasmosis: I suspect, based on my and my coworker’s symptoms (during our “rare” infectious disease outbreak) and my research, that interstitial cystitis and its comorbid conditions can be caused by disseminated histoplasmosis, which causes inflammation throughout the body, causes “autoimmune” symptoms, and is not as rare as believed. I read that “interstitial cystitis (IC) is a chronic inflammatory condition of the submucosal and muscular layers of the bladder, and the cause is currently unknown. Some people with IC have been diagnosed with other conditions such as irritable bowel syndrome (IBS), fibromyalgia, chronic fatigue syndrome, allergies, and Sjogren’s syndrome, which raises the possibility that interstitial cystitis may be caused by mechanisms that cause these other conditions. In addition, men with IC are frequently diagnosed as having chronic nonbacterial prostatitis, and there is an extensive overlap of symptoms and treatment between the two conditions, leading researchers to posit that the conditions may share the same etiology and pathology.” Sounds like Disseminated Histoplasmosis, doesn’t it?
My coworkers and I were always most ill around April/May/June, presumably since the Mexican Free-tail bats gave birth in Texas during May (and the fungus was most potent), and fall/Thanksgiving to December, for some unknown reason (maybe migrating bats from the north?). We had GI problems, liver problems, weird rashes (erythema nodosum, erythema multiforme, erythema marginatum/annulare, etc.), plantar fasciitis, etc., and I had swollen lymph nodes, hives, lesions, abdominal aura, and started getting migraines and plantar fasciitis in the building, and I haven’t had them since I left. It gave me temporary fecal incontinence, seizures, dark blood from my intestines, tinnitus, nystagmus, blurry vision/floaters/flashes of light, benign paroxysmal positional vertigo, isolated diastolic hypertension, what felt like burning skin, various aches and pains (some felt like pin pricks and pinches), tingling, tremors, “explosions” like fireworks in my head while sleeping, and temporary blindness. Suddenly I was allergic to Comice pears (latex fruit allergy or oral allergy syndrome?). I had insomnia (presumably from the fungus acidifying the blood, releasing adrenaline) and parasomnias. It felt like strong bursts of electrical shocks or steady electrical currents in my body, which now feel like low electrical currents at times, mostly at night. I suddenly had symptoms of several inflammatory/autoimmune diseases, including Fibromyalgia, Sarcoidosis, ALS, MS, Sjogren’s syndrome, etc. that have disappeared since leaving the area and taking nothing but Itraconazole antifungal.
No one, including doctors (we all went to different ones), could figure out what was wrong with us, and I was being killed by my doctor, who mistakenly refused to believe I had it and gave me progressively higher and higher doses of Prednisone (2 years after I already had Disseminated Histoplasmosis) after a positive ANA titer, until I miraculously remembered that a visiting man once told my elementary school class that bats CARRY histoplasmosis. So much of it that they evolved to deal with the photophobia and tinnitus it causes by hunting at night by echolocation. There’s a lot more. I wrote a book about my experience with Disseminated Histoplasmosis called “Batsh#t Crazy,” because bats shed the fungus in their feces and it causes delusions and hallucinations, I suspect by the sclerotia fungal mycelia can form emitting hallucinogens (like psilocybin and dimethyltryptamine) along with inflammation in the CNS. (Schizophrenics have 2X of a chemical associated with yeast, part of the fungal life cycle.)
Thank you for your time,
P.S. Doesn’t this infection share all the same symptoms with Gulf War Syndrome?